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Brain Inflamed

On Brain Inflamed we share information from those in the trenches caring for children with autoimmune brain diseases like PANDAS, PANS and Autoimmune Encephalitis. Physicians, Scientists, Parents- all share their best practices. We support through sharing.

Our Story

In this episode I share our story, "our" as in my personal story and journey with my daughter through AE. The interview was conducted by WCNC's Savannah Levins and originally published on her podcast "Unbroken" - you can find her podcast anywhere you listen to podcasts. I highly recommend it... many inspiring stories! 

 

Last week I had the honor of sitting down with WCNC's Savannah Levins to tell "my story." Who's story is it really? I'm not sure... but I shared the journey we, me, our family, most importantly our daughter have walked for the past 6 years. 

Telling your story is hard, it has implications... 

But stories change people- lives ...and isn't that the point? 

Listen using the link below. 

https://podcasts.apple.com/us/podcast/jc-on-the-mystery-that-changed-her-daughters-brain/id1456550707?i=1000452346931

 

 

The term Integrative medicine gets used a lot these days, but what is it?

In this episode I interview Dr. Ana-Maria Temple- traditional pediatrician turned Integrative...why? You'll have to listen. 

She shares top ways we can help ALL children live their most healthy lives, even if we don't have access to an Integrative Pediatrician. 

 

Dr. Temple's Practice: https://www.integrativehealthcarolinas.com/

More information on EMF's https://ultimatehealthpodcast.com/nicolas-pineault-emfs/

I highly recommend this book: https://www.amazon.com/Non-Tinfoil-Guide-EMFs-Stupid-Technology-ebook/dp/B078KKQW6D

 

 

CME Conference on post infectious October 5th:

2019 Autoimmune Encephalitis Post Streptococcal Evaluation & Treatment; A Way Forward 

https://medstar.cloud-cme.com/default.aspx?P=5&EID=5801

 

Dr. Latimer:

M. Elizabeth Latimer, MD received her medical degree from Tufts University School of Medicine in Boston Massachusetts. She completed her residencies in Pediatrics and Neurology at Walter Reed Army Medical Center in Washington, DC, with special certification in Child Neurology. She served as chief of the Child Neurology Division at Georgetown University Hospital in Washington, DC for five years, prior to practicing at Fairfax Hospital in Virginia.

In 2000, Dr. Latimer opened her practice of Child and Adolescent Neurology in Bethesda, MD, where she provided treatment for autism, ADHD, migraines, and other neurological conditions. She’s currently practicing out of her office in Washington DC conveniently located in the heart of Georgetown. In addition to her general neurology and headache practice, Dr. Latimer specializes in caring for PANDAS patients, and cerebral palsy patients who require spasticity management.

More about Latimer Neurology:

https://www.bethlatimermd.com/about/

 

 

"Boundaries and Caregiving" 

The two can co-exist- in this episode I discuss why boundaries are important, dispel a few myths, and talk specifically about how "boundaries" can look a little different when your child is struggling. 

 

In this episode I quote from the book "Boundaries" by Dr. Henry Cloud & Dr. John Townsend 

 

 

In this episode: practical advice for parents and caregivers who want to help their kids talk to peers about their "Difference."

 

This applies to really... any difference. 

 

A link to the conference mentioned it the episode 

http://encephalitisconference.pandasnetwork.org/?fbclid=IwAR0KmUmmzHaO2WOEl8CA1XXh2r0Hn0pkNhDKR-MRg5kuxOs5tB4eMhKKPR8

 

In this episode I discuss the when's who's and how's around discussing your child in the educational setting. 

 

Mentioned in this episode:

The Holiday Docket- by The Lazy Genius www.store.thelazygeniuscollective.com 

$22 until September 5th. 

 

"Everything You Need to Know about IEP's"

https://braininflamed.podbean.com/e/everything-you-need-to-know-about-ieps/

 

PANDAS and PANS in the School Settings- A Handbook for Educators

available on Amazon 

 

 

"School Refusal" the misnomer assigned to the manifestation of post infections brain inflammation (PANDAS, PANS, AE). 

What it is, and is not. 

When do you push a for school attendance and when do you put healing first. 

MENTIONED in this episode:

Rogers Behavioral Health:

https://rogersbh.org/locations/oconomowoc?utm_source=local&utm_medium=organic&utm_campaign=gmb

SUWS of the Carolinas:

https://www.suwscarolinas.com/

TRAILS:

https://trailscarolina.com/

In this episode I discuss tips on how to prepare for and have a productive conversation with your child's doctor. 

Seeing your first patient with PANDAS:

https://www.pandasppn.org/seeingyourfirstchild/

 

National Institute of Mental Health:

https://www.nimh.nih.gov/research/research-conducted-at-nimh/research-areas/clinics-and-labs/sbp/information-about-pans-pandas.shtml

 

In this episode I discuss how to make the holidays a little happier:

When you have a sick child the holidays just aren't the same- they are met with anxiety and honestly in many cases deep sadness over the way things should or "used" to be. 

I break the holidays down into three areas that cover:

Developing a mindset 

Setting boundaries

managing social media 

Establishing priorities

Creating a plan with your family 

Reflecting an evaluating 

 

Resources I reference in this episode:

Boundaries- by. Henry Could and John Townsend 

The Lazy Genius Podcast: The Lazy Genius Podcast

 

 

 

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